Carers - easy read leaflet

This leaflet will tell you about getting support if you are a carer.

This leaflet will tell you about getting support if you are a carer.

2

If you need support to understand this leaflet, you could ask

  • someone in your family or a friend

  • a support worker

  • a carer

or

  • Health and Social Care Connect

    0345 60 80 191

If you need support to understand this leaflet, you could ask

  • someone in your family or a friend

  • a support worker

  • a carer

or

  • Health and Social Care Connect

    0345 60 80 191


Who is a carer

If you look after, help or support someone who would not be able to manage everyday life without your help, you are a carer.

If you look after, help or support someone who would not be able to manage everyday life without your help, you are a carer.

You might be caring for

  • a partner

  • a family member

  • a friend or neighbour.

You might be caring for

  • a partner

  • a family member

  • a friend or neighbour.

You might be a young carer looking after an adult family member.

You might be a young carer looking after an adult family member.

You do not have to live with the person to be their carer.

You do not have to live with the person to be their carer.

The person you look after, help or support may:

  • be an older person

  • have a physical disability

  • have a learning disability or autism

  • have a mental health condition

  • have a long-term health condition.

The person you look after, help or support may:

  • be an older person

  • have a physical disability

  • have a learning disability or autism

  • have a mental health condition

  • have a long-term health condition.

If you do this and are not paid for it, then this leaflet is for you.

If you do this and are not paid for it, then this leaflet is for you.


Caring for a child or young person with a disability or special educational needs

Parents and carers of disabled children can apply for an assessment that looks at

  • how caring affects your life

  • how caring affects your health and well-being

  • any difficulties you are having

  • the things you would like to change about your role as a carer.

Parents and carers of disabled children can apply for an assessment that looks at

  • how caring affects your life

  • how caring affects your health and well-being

  • any difficulties you are having

  • the things you would like to change about your role as a carer.

After the assessment, we will give you information about other services.

We can tell you about things that can support you in your role as a carer.

After the assessment, we will give you information about other services.

We can tell you about things that can support you in your role as a carer.

To find out more about a parent carer’s assessment, contact the Customer Relations Team in Children’s Services

Phone 0345 60 80 192

Website Carers assessment

To find out more about a parent carer’s assessment, contact the Customer Relations Team in Children’s Services

Phone 0345 60 80 192

Website Carers assessment

For free advice, you can also speak to Amaze Sussex. This a local charity.

Website Amaze Sussex

Email sendiass@amazesussex.org.uk

Phone 01273 772 289

For free advice, you can also speak to Amaze Sussex. This a local charity.

Website Amaze Sussex

Email sendiass@amazesussex.org.uk

Phone 01273 772 289

CFTC LOGO RGB PORTRAIT@480

Care for the Carers

  • run social and wellbeing activities for carers

  • help you to access support

  • connect you with other carers.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

Care for the Carers

  • run social and wellbeing activities for carers

  • help you to access support

  • connect you with other carers.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300


Young carers

If you are under 18 and look after a family member then you are a young carer.

If you are under 18 and look after a family member then you are a young carer.

The family member you look after might have a physical or mental health condition.

The family member you look after might have a physical or mental health condition.

Young carers often do extra jobs at home, like

  • cooking

  • cleaning

  • helping someone get washed and dressed.

Young carers often do extra jobs at home, like

  • cooking

  • cleaning

  • helping someone get washed and dressed.

This can sometimes get in the way of

  • school work

  • spending time with friends.

This can sometimes get in the way of

  • school work

  • spending time with friends.

East Sussex Young Carers support carers aged 5 to 17.

East Sussex Young Carers support carers aged 5 to 17.

East Sussex Young Carers can

  • give information and advice

  • arrange for young carers to meet each other, chat and have fun!

East Sussex Young Carers can

  • give information and advice

  • arrange for young carers to meet each other, chat and have fun!

Contact East Sussex Young Carers

Website East Sussex Young Carers

Email youngcarers@imago.community

Phone 0300 111 1110

Contact East Sussex Young Carers

Website East Sussex Young Carers

Email youngcarers@imago.community

Phone 0300 111 1110

Care for the Carers

Runs activities and groups for young carers.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

Care for the Carers

Runs activities and groups for young carers.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300


Assessing your support needs

If you are a carer, or are going to be a carer, you can have an assessment to see what your needs are.

This will let us know the ways that we might be able to help you.

If you are a carer, or are going to be a carer, you can have an assessment to see what your needs are.

This will let us know the ways that we might be able to help you.

Your carer’s assessment will look at

  • your needs

  • the things you are good at

  • who you have to support you

  • any difficulties you have

  • your community.

Your carer’s assessment will look at

  • your needs

  • the things you are good at

  • who you have to support you

  • any difficulties you have

  • your community.

You can complete a carer’s assessment on our website:

Carers assessment

You can complete a carer’s assessment on our website:

Carers assessment

or by contacting Health and Social Care Connect (HSCC)

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

or by contacting Health and Social Care Connect (HSCC)

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

If you need help completing your carers assessment, Care for the Carers can help you

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

If you need help completing your carers assessment, Care for the Carers can help you

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

You do not need to have an assessment to get carer support.

You do not need to have an assessment to get carer support.

There are lots of different organisations that support carers.

For more information, contact Care for the Carers.

There are lots of different organisations that support carers.

For more information, contact Care for the Carers.


Supporting you to care

This is a list of things that may be able to

  • support you to care

  • help you as a carer.

This is a list of things that may be able to

  • support you to care

  • help you as a carer.

Respite care

Time off from caring.

This could be during the day or overnight.

It can be for a short time or a long time.

Health and Social Care Connect (HSCC)

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

Respite care

Time off from caring.

This could be during the day or overnight.

It can be for a short time or a long time.

Health and Social Care Connect (HSCC)

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

Technology enabled care

Sometimes known as telecare, community alarm or Lifeline.

For example, emergency buzzers.

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

Technology enabled care

Sometimes known as telecare, community alarm or Lifeline.

For example, emergency buzzers.

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

TeleCheck

A phone service that supports adults to live safely in their own community.

Offers phone calls at set times.

The phone calls can be

  • reminders to eat, drink, take medication

  • just a chat to check how things are.

TeleCheck

A phone service that supports adults to live safely in their own community.

Offers phone calls at set times.

The phone calls can be

  • reminders to eat, drink, take medication

  • just a chat to check how things are.

Back care

Advice and information about how to look after your back.

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

Back care

Advice and information about how to look after your back.

Email HSCC@eastsussex.gov.uk

Phone 0345 60 80 191

Typetalk 18001 0345 60 80 191

Text 07797 878 111

East Sussex Carer’s Card

Cheaper entry to leisure activities and savings in shops.

Details of someone to contact if something happens to you.

Website: Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

East Sussex Carer’s Card

Cheaper entry to leisure activities and savings in shops.

Details of someone to contact if something happens to you.

Website: Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300


Keeping people safe

Safeguarding is how people who are

  • experiencing harm or neglect

  • at risk of experiencing harm or neglect

can get help to live safely.

Safeguarding is how people who are

  • experiencing harm or neglect

  • at risk of experiencing harm or neglect

can get help to live safely.

Sometimes the person who is being cared for can harm their carer.

Sometimes the carer can harm or neglect the person they are caring for.

This might not be on purpose.

Safeguarding can help.

Sometimes the person who is being cared for can harm their carer.

Sometimes the carer can harm or neglect the person they are caring for.

This might not be on purpose.

Safeguarding can help.

If you are being harmed or worry that you might be, contact Health and Social Care Connect (HSCC).

If you are being harmed or worry that you might be, contact Health and Social Care Connect (HSCC).

You can also contact HSCC if you are worried about someone else.

This might be someone that you are a carer for.

You can also contact HSCC if you are worried about someone else.

This might be someone that you are a carer for.

You do not have to give your name or your details when you contact HSCC.

You do not have to give your name or your details when you contact HSCC.

Phone 0345 60 80 191

Email HSCC@eastsussex.gov.uk

Typetalk 18001 0345 60 80 191

Text 07797 878 111

Phone 0345 60 80 191

Email HSCC@eastsussex.gov.uk

Typetalk 18001 0345 60 80 191

Text 07797 878 111

If it is an emergency, call 999.

If it is an emergency, call 999.


What can I do for myself?

This is a list of things that could help you in your role as a carer.

The list includes tips from other carers of things that have helped them.

This is a list of things that could help you in your role as a carer.

The list includes tips from other carers of things that have helped them.

You could get a weekly Carer’s Allowance if you care for someone at least 35 hours a week and they get certain benefits.

Find out more about Carer's Allowance on the government's Easy Read information

You could get a weekly Carer’s Allowance if you care for someone at least 35 hours a week and they get certain benefits.

Find out more about Carer's Allowance on the government's Easy Read information

Look after yourself

Being a carer can be very tiring.

It is important to take time for yourself.

Look after yourself

Being a carer can be very tiring.

It is important to take time for yourself.

Get online

The internet is full of information, support and places for carers to talk to each other.

Care for the Carers has more information about online support.

Website Care for the Carers digital resources

Get online

The internet is full of information, support and places for carers to talk to each other.

Care for the Carers has more information about online support.

Website Care for the Carers digital resources

Tell your GP

Tell your GP that you are a carer.

They can help you with things like health checks and if you are feeling worried or stressed.

Tell your GP

Tell your GP that you are a carer.

They can help you with things like health checks and if you are feeling worried or stressed.

Register for online services with your GP

so you can

  • book and cancel appointments

  • order medicines

  • look at your medical notes.

Register for online services with your GP

so you can

  • book and cancel appointments

  • order medicines

  • look at your medical notes.

Include your family and friends

Coping alone can make things more difficult for you.

Many carers get support from their family and friends.

Include your family and friends

Coping alone can make things more difficult for you.

Many carers get support from their family and friends.

If you have a job

If you have worked somewhere for more than 26 weeks, you can ask for flexible working.

This is when your work hours or work place changes to help you.

For more information go to Carers UK

If you have a job

If you have worked somewhere for more than 26 weeks, you can ask for flexible working.

This is when your work hours or work place changes to help you.

For more information go to Carers UK

If you have a job

If you have worked somewhere for more than 26 weeks, you can ask for flexible working.

This is when your work hours or work place changes to help you.

For more information go to Carers UK

If you have a job

If you have worked somewhere for more than 26 weeks, you can ask for flexible working.

This is when your work hours or work place changes to help you.

For more information go to Carers UK

Make sure you and the person you care for are getting the right benefits

If you are finding it difficult to pay bills or need help with benefits, you can get free support and advice.

Contact the Welfare benefits helpline run by HARC.

Phone 0333 344 0681

Open 9am to 5pm Monday to Friday

Email benefitseastsussex@harcuk.com 

Make sure you and the person you care for are getting the right benefits

If you are finding it difficult to pay bills or need help with benefits, you can get free support and advice.

Contact the Welfare benefits helpline run by HARC.

Phone 0333 344 0681

Open 9am to 5pm Monday to Friday

Email benefitseastsussex@harcuk.com 

Connect with the East Sussex Carers Centre

Care for the Carers support unpaid carers. 

You can get information and advice, counselling and friendship.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300

Connect with the East Sussex Carers Centre

Care for the Carers support unpaid carers. 

You can get information and advice, counselling and friendship.

Website Care for the Carers

Email info@cftc.org.uk

Phone 01232 738 390

Text 07860 077 300


National helplines

Carers UK

Carers UK is a national charity providing information and advice to carers:

Website Carers UK

Email adviceline@carersuk.org

Phone 0808 808 7777

Open 10am to 4pm Monday to Friday

Carers UK

Carers UK is a national charity providing information and advice to carers:

Website Carers UK

Email adviceline@carersuk.org

Phone 0808 808 7777

Open 10am to 4pm Monday to Friday

Carers Trust

Carers Trust is a national charity providing help and advice to carers.

Website Carers Trust

Email info@carers.org

Phone 0300 772 9600

Carers Trust

Carers Trust is a national charity providing help and advice to carers.

Website Carers Trust

Email info@carers.org

Phone 0300 772 9600

Macmillan Cancer Support

Support for people who have cancer or know someone who has cancer.

Website Macmillan Cancer Support

Phone 0808 808 00 00

Open 8am to 8pm every day.

Macmillan Cancer Support

Support for people who have cancer or know someone who has cancer.

Website Macmillan Cancer Support

Phone 0808 808 00 00

Open 8am to 8pm every day.


Getting involved

For more easy read information about getting involved in making services better, visit

Getting involved in making services better

For more easy read information about getting involved in making services better, visit

Getting involved in making services better